Started Immunotherapy

First immunotherapy on December 17th. My recent PET was less positive than we had hoped. The cancer in my right lung is in check and things look stable. My left lung has shown the disease has continued and the intensity of the SUV ( PET scan values 2.5 and above are considered malignancy. (Mine went from 2.0 to 4.6 and in another it went from 4.4 to 4.8)) has markedly increased since last scan. The pain has increased in the last few months in my left lung. So, the oncologist is going to use these results as a baseline and I’ll get another PET in 90 days. If the immunotherapy hasn’t made headway on the left lung, then a new strategy will have to be developed and put in play. If anything is consistent, it’s the unpredictable nature of cancer.

💪🏻 and positive!!

Portal to another World

Finished 3rd round of chemo a couple of weeks ago. That part is going as one would expect- usual side effects that pass after a week or so. My anemia is negatively affected by the chemo so I now have to get a Retacrit shot every week ( side effect of the shot is a constant, massive headache 🤕). As much as I like the staff at the clinic….seeing them weekly was not on my radar. The normal weekly dose of Retacrit is 20K units. I’m given 40K! It’s become a real battle between Anemia and Cancer 🤷🏼‍♂️😙. A bit absurd, but what can you do? It’s fun to watch the doctors as they react to these skirmishes.

The fourth ( and perhaps last 🤞🏻) chemo is coming up on Tuesday, next week.Enjoying feeling normal -relatively speaking-for the next few days.

The title of this blog post is a reference to a song lyric by Dublin singer, songwriter, writer & guitar player, Keeley Moss. Her band, KEELEY, is pretty amazing. Like me, she is a True Crime buff, and has a WordPress blog, The Keeley Chronicles, which is dedicated to the 36 years old, still unsolved murder ( in Larne, Northern Ireland-Ballypatrick Forest)of 18 year old German student/tourist, Inga Maria Hauser, in 1988. It’s a heartbreaking case that Keeley Moss has presented in a multitude of chapters or posts on her blog, with sensitivity and insight.

Anyway, here is a shot of me during round 3 of chemo, recently. Not bad for almost 73! Lol!! No close ups allowed! I’m more comfortable being on the other side of the camera lens 😉.

My best to all!

Don’t sweat the small stuff.

💪🏻👍🏻💙.

Second Chemo

Was a long one yesterday, 4.5 hours. Mostly due to extra labwork to check on my kidney function – would I be able to handle a dosed down Carboplatin infusion ( one of two chemo drugs I’m getting). This particular lab had to be sent up to the main hospital lab, rather than the in-clinic lab. I was given an injection of Retacrit, which should increase my RBC. I’ll have to get this injection and kidney testing with each cycle of chemo, but I’m still on track to finish by November and then do a PET scan and assess where we are.

Can’t say enough good things about the Oncology staff and especially the nurses. It’s got to be a taxing job, on many levels. I have a great rapport with my Oncologist-brilliant guy!

It’s nearly the official start of Fall.

Don’t sweat the small stuff.

All good 👍🏻💪🏻🙏🏻.

First Chemo

While in the chair a Social Worker stopped by to check on me. Pleasant conversation about fears and frustrations regarding cancer and my five year journey. She left me a ‘Bags of Hope, with lots of useful goodies. The bags are put together by volunteers that have been doing this since 2016. The support and assistance of the clinic staff is unsurpassed!

It takes a handful of meds to get through chemo- to help manage nausea and other side effects. Hopefully, I won’t be needing some of this collection, but better to have on hand.

“Don’t sweat the small stuff “.

All good.

🙏🏻💪🏻

Health Update:

The port was implanted yesterday afternoon. It’s under the skin, where you see the two horizontal incisions. The catheter is attached to the port, near the top incision and travels up and to the right connecting to the jugular vein. A large vein is needed to deal with the chemo drugs. It finally hit me, on the operating table ( I chose local anesthesia over total, so I was fully awake and aware throughout the procedure) things are getting serious. 99% of patients choose to be totally out.

The club no one aspires to. Because I have a port I have to carry a card identifying as such, complete with serial number on the back, etc. I also have to wear a wristband identifying the port brand as well as something for my keychain. Mostly, this is for the benefit of healthcare workers, but it serves as a reminder for me as well

It seems odd, but in order to fight cancer with drugs- in my case two in tandem- I need a handful of drugs to help me cope with the two chemo drugs, pemetrexed and carboplatin. In the past 5 years I have been through surgery ( I didn’t recover well and still dealing with collateral damage today) and radiation ( SBRT), 15 sessions, twice. This is the last option available to help me.

Always positive and strong! Hug your loved ones! 🙏🏻💪🏻🤗

Hidden West Seattle

Nestled between Delridge Ave. and 35th Ave. is a couple mile stretch of green space. This is a marshy, pond area created by a beaver. We saw a family of ducks as we walked along the trail, and an old power substation complete with a high wall and cameras surrounding it.

Mt. Rainier

From my walk yesterday. Time to clear my mind.

Health update: Saw a doctor yesterday to discuss my condition and next steps. I see a new oncologist tomorrow as well as do an MRI. One more oncologist to see after tomorrow then the doctors huddle up and present my case to the Cancer Board that meets weekly. Right now things are leaning toward both radiation and chemotherapy. We’ll see how things shake out over the next couple of weeks.

All good 👍🏻💪🏻.

🙏🏻

A Magical Place

My brother lives in southern Oregon, a few miles from a tiny town called Merlin. There are 11 deer living on his property. This doe likes to lay in the shade, on his porch, and listen to the TV.

Spotted on my walk Yesterday

Health update:

Disappointed, but not surprised. Pathology report came back positive for cancer-actually two markers- TTF-1 & napsin A were both positive. See doctors on the 19th and 20th, plan the next move. This is chapter 3 of this journey that started in early 2019.

🙏🏻

All good. 👍🏻

Health Update

Yesterday was a bit exhausting, with three doctor appointments. Nearly overwhelming for my limited brain power. Anyway, PET scan has been scheduled for May 7th. Results from that will determine next steps. I really like my oncology team and the clinic in general. They listen, explain and are totally positive energy. It’s a tough aspect of healthcare, to work with patients who have serious issues and concerns.

All good 👍🏻.

Friday View

On my walk a few minutes ago. A cloudless sky in Seattle- who would’ve thought?

Note: health update coming next week. I’ve seen one of three doctors, after my last CT on the 8th. Two more still need to weigh in. Based on what the first oncologist said, I have a sense of where things are going. It’s a mixed blessing/bag. All good.

This journey started in 2018, with the first CT scan. It’s just the nature of ‘c’.

Blessings 🙏🏻

Health update:

Easter

I’m a week away from my follow up CT scan. This scan will validate ( or not) that the Targeted Radiation I did in Dec/Jan was successful.

Last Friday I had a dermatology appointment to address some skin issue I’ve had for a few years-actually started right after my first encounter with NSCLC, in 2019. It was a new dermatologist for me, so he wanted to do a full body exam. Everything looked pretty typical until he got to the back of my left, upper thigh. There/was a patch of red skin in a place I would have never noticed. He took a biopsy, but is 99% certain it is basal cell carcinoma. When the biopsy is finished he’ll call me with results and next steps. I’ve been so focused on my lung tumor …well, this event took me by surprise. So, now tracking two cancers in my body. 🤷🏼‍♂️🤔.

Wishing everyone a belated Easter. Warmer weather is on the horizon for us here in the Pacific Northwest 🤞🏻.

Blessings to all 🙏🏻.